The Learning Disability Mortality Review (LeDeR) programme was established in 2016 following the Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD). Evidence showed that people with a learning disability are four times more likely to die of avoidable causes and face health inequalities compared to the general population. People with a learning disability are more likely to experience a number of both physical and mental health conditions.

In March 2021 the first LeDeR policy was published. The LeDeR Programme changed its name to ‘Learning from lives and deaths of people with a learning disability and autistic adults (LeDeR) programme’. The scope and process of carrying out reviews changed and two tier process was introduced- Initial and focused reviews. In June 2021, a new LeDeR system was launched to support the new way of working.

The LeDeR policy requires that from 1 April 2022 all Integrated Care systems (ICSs) are responsible for the delivery of the LeDeR programme and to implement all of the requirements of this new policy. Other changes are

LeDeR programme to be part of Quality Directorate and to set up a LeDeR governance group to oversee the completion and delivery of the local action plan. The LeDeR governance group should be representative of key partners who are able to influence change.

From 1st January 2022- LeDeR programme started reviewing deaths of autistic adults.

LeDeR Annual Reports 2021/22

This is the third LeDeR Annual Report 2021-22 since the start of the programme. This report provides summary findings from completed reviews of deaths of people with a learning disability with emphasis on areas that we did well and areas needing improvement. During this reporting period no review of a person known to have had autism diagnosis was completed.  

Previous LeDeR Annual Reports

Read more about what LeDeR is in this easy read guide.

*Information from http://leder.nhs.uk

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